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News and request for prayers

  • E. E. Nalley
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4 years 3 months ago #13664 by E. E. Nalley
E. E. Nalley created the topic: News and request for prayers
Hey guys

First let me say this is not an April fools joke.

Friday, April 1, I woke up with having fairly intense shortness of breath. I chalked it up as being overweight and went to work, but instead of going away it got worse. Worse enough that I became afraid I would pass out. So I sat with a coworker and tried to order my breathing, but couldn't. My boss was concerned enough that he insisted that I go to an urgent care place up the street. After a breathing treatment and an EKG (which came back normal) I began to feel fine. The doctor insisted I go to the ER because he felt that I maybe having a heart attack.

Despite being forty-six I actually have no risk factors for heart attacks. My blood pressure is naturally 112/70, my cholesterol is a perfect, my lipids are perfect, I'm not on any of the medications men in my age group normally are. That being the case, I still went to the ER where the doctor did a pair of blood tests to check for heart attack, both of which came back negative so he basically said that he didn't know why I was short of breath earlier but it wasn't a heart attack and since I was fine then, I was free to go. Saturday, I wake up and again I'm having trouble breathing, not as bad but sufficiently troublesome that I'm not going to play around with it. So I go to another urgent care I get another breathing treatment and hey presto everything is fine again. This time we took x-rays to check in case there was a clot that somehow missed the blood work and was causing this. No clot, but evidently I do have an enlarged heart. I'm a pretty big guy and by that I don't mean just fat I mean I'm excessively boned to the point that I've never completely broken a bone in my life and every radiologist I've ever spoken with has remarked on how remarkably thick my bones are. This is the first I've heard of having an enlarged heart. It could be that it's just bigger like everything else on me is the other reason you can have an enlarged heart that you had a heart attack previously.

But my EKGs and complete lack of warning signs seem to contraindicated that.

What I do have in my apartment is a mold problem. I've been here three years and every winter except this one this apartment is flooded because of the upstairs neighbors not running their hot water during a freeze. And when I say flooded I mean 5 foot holes in the ceiling water ankle-deep throughout the apartment and running out the front door like a creek. And while they did replace the pad that did not replace the carpet as it was quote cleaned unquote. I'm certain the inside of these walls are covered in mold. Of course none of the doctors believe that any of my symptoms comes from mold despite every physician's reference I can read online saying that they're all symptoms of mold poisoning.

The point is I am done waiting for a Dr. to give me validation I'm having to panic move to get out of here, because this apartment is killing me. This means I have to engage a panic move to a new apartment, shuttle everything I can into a storage unit as quickly as possible to facilitate that panic move, all while all as quickly as possible. As in within a month quickly. I don't know how quickly I'll be able to return to writing, other than the story I already have turned in to Kirsten. I'd like to express my most sincere apologies to the generation two team who have been patiently waiting on me and Bek to finish The Road to Whateley, as we both had quite a number of reversals that are held up the writing process.

I also apologize to all of you for the hold up.

While it's not in my nature to hold my hat out I will say if you are suddenly moved by my tale of woe my GoFundMe for medical expenses is still up. If you'd like to help you can find it here .

Thank you all for your time and your patience

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 3 months ago #13679 by Kristin Darken
Kristin Darken replied the topic: News and request for prayers
Obviously, rule 1... take care of yourself, first. No amount of writing deadlines or commitment is worth making yourself sicker to meet. We'll deal with that stuff later.

A tip from past experience (my folks ran a company specifically dealing with mold and allergy issues back when the extent of what people knew about allergies was basically "Oh, you mean hay fever?"). One of the first things you should do is get yourself out of the environment. If you don't have someone nearby willing to let you couch crash for a few days, a tent and a freshly cleaned sleeping bag is a good secondary option. If it IS a reaction to mold, this should show you pretty quickly... because removing yourself from exposure to it will allow you to recover instead of get worse.

This is more important than moving your stuff to a storage site or finding a new place because if the problem is as bad as you suspect, anything you carry out of the place is going to be carrying mold spores. To the extent that anything that can't be easily washed/cleansed may need to be replaced. And you don't want to keep exposing yourself to those spores while moving things around either. When you DO get around to moving things, make sure you're wearing a decent dust mask. And bag the clothing you use outside of your new digs to clean it before you go take it inside. Also, you will want to give your rental insurance people a call if you (hopefully?) have rental insurance... because this is clearly not your fault and you should be able to get some support for moving and replacement of mold free stuff from them as a result.

Fate guard you and grant you a Light to brighten your Way.

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4 years 3 months ago #13715 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
Worst weekend ever.

So you've already seen how Friday and Saturday went, here's the rest of the weekend:

Sunday night I could not sleep due to my neck, which I presume aggravated the breathing issue I'm already dealing with. As I was having trouble breathing again I was remembering a local talk radio personality named Royal Marshall . Royal was a health forty-three, cut and ripped real man's man and something of a fixture in Atlanta radio is the side man and engineer for the since retired Neil Bortz. His widow says that Royal looked up at her and said, "baby I feel sick, I need a glass of water."

And then Royal Marshall fell over dead; myocardial infarction, or as it is more commonly known among EMTs, the widow maker.

Royal was two years older than I am, and I'm not a health nut, and I'm not cut and ripped. And so I didn't take any chances and I went back to the emergency room again this morning. So I've had more blood work, and more x-rays (if I could just get those gamma rays, I would start turning green like Bruce Banner!), And yet another EKG which joyfully is fine. The cardiologist did give me some good news, he believes that my enlarged heart, which he referred to as only slightly enlarged, is due to what in his opinion is sleep apnea, which I've had since I was an infant. He isn't sure what is causing the constriction of my lungs, but he admits that mold could be at least a factor but not likely overriding cause as my other roommates are asymptomatic.

I'm still breaking this lease and getting out of here of course!

So he increased the dosage on my inhaler, and my steroids, told me to trust that the inhaler would fix things and home I went with the $700 bill. That's after insurance by the way. The good news is it now at least I have the confidence that I'm not going to keel over and can just ride out this respiratory issue until I can get my domicile changed and put it all behind me.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 2 months ago #15447 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
Hospitals are so much fun I don't know why everyone doesn't hang out in them!

So Saturday, went down to visit my mom and her new place made all the suitable and expected noises about what a nice house it was how it was going to be great and her plans for improvement. We go out to eat dinner and as I walk into the restaurant there's an odd metallic taste the air.

And then I can't breathe.

My mom says all the color left my face I broke into a sweat and the inhaler didn't seem to be helping. Mom being mom, insists I go to the ER because she certain I am having a heart attack. Some more blood work, more x-rays, still not having a heart attack. I'm there till 5 o'clock in the morning told I have to go see a cardiologist to have an echocardiogram to be absolutely sure I've still not having a heart attack after all the bloodwork that had done.

So I take it easy Sunday and Monday I can't breathe again.

So I end up at the ER again, and finally I get a doctor who actually listen weighed everything I've been saying, plus all this information from all of these ER visits which he had access to. He did do an additional blood oxygenation test which hadn't been done before and got some interesting results.

My lungs are actually working quite well, despite feeling like I can't catch my breath the lungs are actually working my blood oxygenation is fine by CO2 gas exchange is fine and while he made me promise to see the cardiologist just to be certain he agrees with with me that most likely happening is having is an acute allergic reaction to the mold or some other trigger in the apartment aggravated by my sleep apnea.

He recommended adding a Zyrtec and put me back on steroids. So far (knock wood) different seems to be night and day.

Of course it's been very expensive finding this information. Sigh. If you'd like to throw a little something in the hat my go fund me still open. Link is above.

Thanks

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 2 months ago #15448 by elrodw
elrodw replied the topic: News and request for prayers
Of course you know thoughts and prayers and such are still with you. Glad you found a doc who actually listens. Finding one like that seems to be such a chore these days... Anyway, chipped in a bit more, and as always, prayers with you.

Never give up, Never surrender! Captain Peter Quincy Taggert

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4 years 2 months ago #15451 by Bek D Corbin
Bek D Corbin replied the topic: News and request for prayers
Damn, Duke, you are worrying me!

So snap out of it! Lose fifty pounds by tomorrow, Noon at the very latest! Get a cyber-heart! Be able to run at 100 MPH in slo-mo while having all the facial expression of a Ken doll! Dig that power ring that you been saving for a rainy day and charge it up!

Dammit, I am too dang young to be burying friends all over the place! The Seventies weren't THAT long ago!

Bek

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4 years 2 months ago #15454 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
Well, get me a M2-F2 and I will happily go be the $6 million man! :D

On the plus side, if I've learned nothing else about myself is that I'm in remarkably good health. Or is the doctor yesterday pointed out, short of being in the ER, you are the picture of health!

My issue seems to be completely environmental, so once I can get that taken care of I should be able to get back up and running shortly.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 2 months ago #15792 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
If I'm at a doctor, it must be Monday.

Another wonderful update for those who care about such things. So I came off of being on steroids over the weekend and just like every other weekend this is happened come Monday I can't breathe. So I go back to the Urgent care place and I received not one but 2 breathing treatments and finally I get to breathe again, but I have a little bit of fortune on my side this time. In the same office at the urgent care place is the systems allergy clinic. The urgent care dock arranges for me to be seen by the allergist who gets my life story about all this and agrees this is most likely mold, based on what she seeing I don't have asthma, and the mold while not being held down by the steroids in flames my lungs so badly that I only have about 30% use of them.

That's the bad news, the good news is she put me on a much stronger inhaler to deal with that, put me back of the steroids to keep the inflammation down, and I hope eventually the credit union will come through the loan the RV that is going to be mine and my brother's new home for the next year so we can get out of this lease and the apartment that is trying to kill us actively.

I just hope that Blue Cross and Blue Shield doesn't drop me like a hot potato, because work switched to them from Aetna on April 1, the very day this health care nightmare started for me. And in one month I have managed to almost reach my yearly deductible For out-of-pocket.

I would really like to have a week where I don't see a doctor. That would be really awesome.

If you're moved by my tale of woe feel free to click the link to my go fund me. The hat can always use the help.

Thanks! And will keep you in the loop.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 1 month ago #16280 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
The allergist insisted I go see a lung specialist, Which I did yesterday. He does all the tests and comes back that I have not been crazy this whole time, he believes that my lungs are coated with mold and an allergic reaction is binding and clogging things keeping me from breathing. So tomorrow at 11 I report to the hospital I get put under general anesthesia (always a little scary) and they put a tube down my throat to suck all the nastiness out and do an eyes on inspection.

Dr. says he expects everything will go well, I may need to be on antifungal medications for a little while, but he says that in a couple of weeks this will just be an unpleasant memory and it will finally be over. I'm praying to God that is so.

I'd appreciate your prayers too. Thanks and will see on the other side.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 1 month ago #16287 by elrodw
elrodw replied the topic: News and request for prayers
You're always in my prayers, my brother. All will go well, and you'll be feeling much better very soon. Keep me posted, please.

Never give up, Never surrender! Captain Peter Quincy Taggert

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