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News and request for prayers

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4 years 1 month ago #16292 by Kristin Darken
Kristin Darken replied the topic: News and request for prayers

E. E. Nalley wrote: Dr. says he expects everything will go well, I may need to be on antifungal medications for a little while, but he says that in a couple of weeks this will just be an unpleasant memory and it will finally be over. I'm praying to God that is so.

I'd appreciate your prayers too. Thanks and will see on the other side.


I am so glad you got a doc who understands allergies. So many of them still think of allergies and a lot of the movement around them as pseudo-science... which is fair because its often tied into the homeopathy movement in ways that result in stupidity instead of rational science... but allergies ARE bad news and the root cause of a larger number of supposedly instances of illness than most people realize. But most general practitioners are little more than tech support... they have a troubleshooting manual that they follow that connects symptoms to causes and all too often, they rely on the body to handle the cause on its own and give you medications or treatments to suppress the symptoms. It's only when you get into the specialists and researchers that you find people who really know how parts of the body work and can identify these kinds of problems. Or work up realistic solutions to the actual problem instead of just dealing with the symptoms.

Fate guard you and grant you a Light to brighten your Way.

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4 years 1 month ago #16371 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
"Curiouser and curiouser," said Alice.

So as you gathered by this I'm awake and alive and those are both good things. Doc tells me he vacuumed both lungs clean, but what has him concerned was that there wasn't enough "stuff" to account for my symptoms. My lungs are extremely inflamed, and there was mold which was inflaming them, but not enough to account.

This is further troubling because he asks me about a blood test I took back in October that he found in the system. He wanted to know what my primary had discussed with me about it. To which I informed him, "he said all the blood work came back fine is that not true?"

And you never want to hear your specialists say, "no it's not true."

Come to find out the tests were indicative of the connective tissue disorder possibly an autoimmune form of lupus. So he does the procedure cleans out, doesn't find enough of what is expecting, and one plus one are beginning to turn to 2. They take new blood work and I'm awaiting the results of that, so we'll keep you in the loop that way.

If I do have lupus he tells me that condition is completely manageable, and the treatments are actually restorative so I should get normal function back. So whether this is still mold or mold aggravating lupus to prognosis seems to be good.

We will see.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 1 month ago #16451 by Bek D Corbin
Bek D Corbin replied the topic: News and request for prayers
This is the Hell of the modern medical systems: how much of what's happening to you is real, and how much is the tests gaming the system so they can sell you a pack of really expensive drugs that you don't really need? Currently, I'm on a cholesterol drug and Vitamin D, along with a diabetes drug. Of the lot, the only one I'm really certain that I need is the diabetes drug. But wotthehell, I'm getting dinged for the medical benefit anyway...

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4 years 2 weeks ago #18504 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
Well, that was not fun!

My rescue inhaler changed brands because of my insurance, and it didn't react the way I'm use to, even though it's the exact same chemical. I know it should not make a difference but it did. Normally when I use the rescue inhaler is because of a feeling of mild constriction or tightness in my chest. And the one chemical relieves that sensation. This one didn't.

And we both know what tightness in the chest could be.

So I figured better safe than sorry and I went back to the ER. This time they admitted me, and I was there from Thursday night at 10 or so to Saturday night at about the same time. Did the tour the radiology department, I was x-rayed, CT Scanned and had the echocardiogram I've been trying to save up for. Had enough blood taken to open my own blood bank, but there is good news at all this.

The echocardiogram came back completely normal, with "trace amount of back flow from one ventricle not completely closing, not sufficient for intervention at this time."

Which is pretty much the final nail in the is something wrong with my heart coffin? Which is basically no, nothing is wrong with my heart. My good cholesterol is slightly high, my triglycerides are slightly high, which is somewhat expected because I am hundred pounds overweight and I eat out too much.

It seems more and more likely that what I have is actually lupus, and that's my immune system is attacking my body. Once that is under control and I get my weight and diet under control I should be good for another 40 or 50 years.

Here's hoping anyway. I intend to live forever or die trying!

At the rate I am racking up medical expenses, I'll need to live forever to pay them off! If you'd like to help with that, there's a link to my go fund me in the first post of this thread. Any little bit helps.

Thanks! And now I'll see if I can actually get some writing done this weekend.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 2 weeks ago #18507 by Astrodragon
Astrodragon replied the topic: News and request for prayers
EE, it might seem a silly question, as you say they've done a load of blood work, but have they checked how your thyroid is doing?

I love watching their innocent little faces smiling happily as they trip gaily down the garden path, before finding the pit with the rusty spikes.

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4 years 2 weeks ago #18509 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
You know, I don't know. Why do you ask?

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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4 years 2 weeks ago #18514 by Astrodragon
Astrodragon replied the topic: News and request for prayers
Because the symptoms you seem to have are pretty similar to the ones my wife has. She has allergic ashtma - mild as a child, but now much worse as in her mid-20's her immune system decided her thyroid was alien and attacked it. So it basically doesnt do anything any more. This seemed to make her allergic reactions worse.

They took years to actually diagnose this, possibly because this is something normally found in 70+ people, and the doctors didnt think to look. Its easily medicated, but as I said, they didnt think to look. It might be worth just checking.

I love watching their innocent little faces smiling happily as they trip gaily down the garden path, before finding the pit with the rusty spikes.

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4 years 2 weeks ago #18784 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
have you ever found yourself in the Curious position of being told that you don't have a disease, and that's bad news? This is where I find myself. It is been just about settled that I probably had lupus. It would have explained all my symptoms nicely I do several other autoimmune diseases and that all would've made sense. Unfortunately mother nature is not going to cooperate that way.

Unfortunately all of the tests have come back negative so I do not have lupus. Which leads me back to square one but what do I have? Being a systems engineer I begin to look at the problem. I have possibly have a pinched nerve in my neck, which is the likely culprit of my hands being out. So I asked lung doctor is it possible I misinterpreting shortness of breath and reduced one capacity over neuromuscular pain for a pinched nerve?

Doc thinks that's as good a theory as any, so now I'm off to the MRI to see how bad the nerve is. Here's hoping it's a co-pay I can afford. Stay tuned.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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3 years 11 months ago #20207 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
Well, at least I know.

Results of my MRI from Friday are in; I have a herniated disc at my C2 vertebra that requires surgery of an evidently immediate nature. I'm currently waiting a phone call from the surgeon to discuss options and schedules and how long I'm going to be out of work, the short answer is apparently 2 weeks.

Prayers are of course appreciated, and if you have any loose change burning a hole in your pocket you can contribute to my go fund me which is linked in the first message of this thread.

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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3 years 11 months ago #20210 by E. E. Nalley
E. E. Nalley replied the topic: News and request for prayers
*Fights back tears*

There aren't words for how awesome you guys are! Thank you so much!

I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it.
Thomas Jefferson, to Archibald Stuart, 1791

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